Public Meeting - Defending Chronically Ill Patients Everywhere
LESSONS FROM LYME DISEASE ADVOCACY IN IRELAND, EUROPE & THE UNITED NATIONS
Date: Monday 26 November 2018 from 6pm to 9pm.
Venue: MacNeill Theatre, Hamilton Building Trinity College Dublin, Ireland
Access to the MacNeil building is from Pearse Street beside the Science Gallery.
Time: 6pm - 9pm
Cost: Free admission - No booking required
Lyme Disease is Europe’s fastest growing vector borne illness yet there remains serious issues with prevention, diagnosis and treatment.
As seen in the recent documentary Living with Lyme Disease, patients are being left undiagnosed, misdiagnosed and untreated becoming chronically ill as a result.
Lyme disease is the next great health scandal with institutional barriers creating unnecessary suffering and hardship.
The headline speaker is Jenna Luche Thayer an internationally renowned Human Rights Campaigner.
Jenna is in Dublin to speak for the first time ever. She will share her experiences of working with the United Nations and World Health Organisation to increase understanding of this terrible illness and to protect patient human right defenders. Other speakers will describe their work securing political change at European and national level.
The work of patient advocates internationally provides valuable lessons for patents groups and health campaigners everywhere.
Jenna Luche Thayer, Founder of the Global Network on Institutional Discrimination
Jenna will present on her work documenting, analyzing and putting into UN record the human rights violations against persons suffering from Lyme borreliosis and their human rights defenders. r
Marc MacSharry, Fianna Fáil TD for Sligo–Leitrim
Marc will talk about the work of the Cross Party Oireachtas Group on Lyme Disease and Co-Infections.e
Lynn Boylan MEP, Sinn Fein. Confederal Group of the European United Left – Nordic Green Left
Lynn will discuss the European Parliament Resolution on Lyme disease (Borreliosis) and how patients can effect change at European level